Kuva Satu Wedenojasta.

Satu Wedenoja

Senior Medical Officer Welfare State Research and Reform, THL

Kirjoittajan blogeja

The implementation of codes for rare diseases in healthcare is a huge leap towards better treatment and research
Lukuaika7 min
Hyvinvoinnin ja terveyden edistämisen johtaminen, Hyvinvointi- ja terveyserot, Toimintakyky

Rare diseases is a new concept in the field of medicine. At the level of the EU, awareness of the challenges posed by rare diseases began to grow at the beginning of the 21st century.

Lue lisää The implementation of codes for rare diseases in healthcare is a huge leap towards better treatment and research
Satu Wedenoja Iiro Toikka Anna Kanninen

Lack of knowledge makes rare diseases expensive to treat while increasing human suffering
Lukuaika6 min
Toimintakyky

When speaking about the health of the population, the focus is usually on common diseases. Rare diseases are the opposite of common diseases. A disease is classified as rare when it affects fewer than one in 2,000 people, but many diseases are much rarer than that. Altogether, they affect 6-8 percent of the population.

Lue lisää Lack of knowledge makes rare diseases expensive to treat while increasing human suffering
Satu Wedenoja Iiro Toikka